So again insert witty title here..

We went to MDAnderson and got the report for Jason's 2 month scan. Well to put you all out of suspense we did get an all clear, there is nothing on the reports, markers, or physical exam to suggest a recurrence. However, because thats the way we roll, the pain that Jason has been having in his back for the past month is due to a fractured pelvis. Luckily it does not go all the way through. We cannot determine right now if it is due to progression of disease (recurrence) or the healing process. There are signs to point that Jason now has osteoporosis. Within the next 2 weeks we should be getting a bone scan and a bone density scan to determine what damage is done. We will then go to the Endocrinologist to determine the best course of treatment. In the mean time Jason will go to the Pain Management Clinic and we will see about getting his pain under control (again!). The node that was enlarged on his right lung on his last scan (the one we were going to keep an eye on) has resolved itself, but another has shown up. Like the last time all we can do is wait and see what the next scans tell because we really dont feel like going through having a ton of biopsies done and everything still point to waiting.
As for the lymphedema, Dr. Tannir agrees with me(go KIM) that it is from the radiation that Jason went through in 2008. It will be something that we will just have to deal with from time to time. Since it is not constant J will not have to be put on a diuretic.
So on one hand wahoo, we can breathe a tiny sigh of relief for now, on the other we have yet one more hurdle. Oh well, who would have thought that having a fractured pelvis would be good news!!

Out,
Kimmy

Lymphedema.....

So all was set for Jason to go to New Orleans with Adrian this weekend, well once again best laid plans. This morning J woke up with both feet, ankles, and legs swollen. We took him to Memorial Hermann, they did an ultra sound, chest x-ray, and blood work. Every thing came back negative. The Er doc diagnosed him with Lymphedema which is basically retaining fluid in a extremity. I called Dr. Tannir's office but apparently everyone thought it a grand day to not be there. So I emailed when we got home and I will call again on Monday to get a follow up appointment. He is now wearing those lovely white stockings and elevating his feet. This was not how this weekend was suppose to go. We are both just tired of this. Oh well we will keep on trudging through. I have been following the blog of the parents of Layla Grace. Unfortunately this little one went to heaven on Tuesday after a valiant fight with Neuroblastoma. I guess Jason's legs retaining fluid is not much compared to that. Tomorrow Ronan and I will join with families around the world to participate in a balloon release to celebrate the life of an angel on Earth. All being said I will hug Jason and Ronan both a little longer tonight. Give thanks for what you have.

Kimmy

Insert title here

So, last Friday we had a scare. Jason woke up with pain that he said was like what he had when this whole mess started. I emailed the PA and we went in on Monday and had a blood draw. The tumor markers are still with in normal range, so sigh of relief, its not cancer. So now the problem is what is it. They think it might be feeling coming back into areas or just a shift in Jason's center of balance. He is taking Ibprofen for swelling and some pain med. If it is not better in 3 weeks when he has his 2 month scans they will reevaluate. Other that we are okay. I am currently searching for a car and planning for Jason's and Ronan's birthday parties.
On a different note it seems when anyone now has a cancer diagnosis it just hits me hard. Please lift the family of Layla Grace up in your prayers. She's a little one who was diagnosed with stage 4 neuroblastoma. She is quickly approaching the end and her family needs all the strength they can get. You can read her blog at http://laylagrace.org.
Kim