Friday, June 24, 2011

Just an update....

Thought I would drop in and let you all know how we are faring. All in all we are doing well! Jason restarted physical therapy this week. We are very excited about this because he has tons of room for even more improvement. He has been getting down on the floor (laying on his stomach, or sitting for short periods of time) and playing with Ronan. Each day he is improving in someway. Ronan is doing good he is making leaps in bounds of improvement with potty training! This is very exciting. The week of the 4th he will be starting daycare and I think I am having a harder time of it than him. I am having a hard time trusting other people with my only child....Oh well, he will have a blast and everyone tells me it will be harder on me than him. Roo going to daycare will give me more time to work on my business and free up time for me to go back to school. Hopefully if its not too much maybe even squeeze a part time job in there. So all in all everything is headed in the right direction with J and us. We have a minor snafu with my Mom and will be addressing that on this upcoming Tuesday. Hopefully that is all it will be. So prayer request this week, pray for good health for my MOm....Prayers Welcomed! Kimmy

Tuesday, June 7, 2011

And the news is........

We went and had Jason's follow scans done yesterday. Its 10 months post first transplant and 6 months post second and..... HE IS STILL IN REMISSION!!!!!!!!!! There was nothing on the scans to indicate a relaspse and his tumor markers are still great. His blood counts look good. The only bad news we walked away with is that he still has the blood clots in his lungs. He is still being given a blood thinner and it unfortunately looks like he could be doing this for the rest of his life. BOOO! But if thats the price we pay so be it. Dr. Tannir (yes ladies and gents we got to see him for the first time in about a year) walked into the room and gave Jason a hug then gave me one. I love this doctor. He amazes me with his compassion for his patients. I dont know if its just Jason and myself(because we are lovable) or if he handles all his patients this way. He was very happy with Jason's progress. Said that he knew we had had very rough time but was glad that Jason is looking so good. The last time Dr. Tannir saw J he was 360lbs due to water weight. J was 260lbs today. We did learn that somehow the chemo affected J's heart and that he will always run a higher pulse now. Thats okay he just wanted to be like me!:) He did tell J not to worry about going back to work or looking for a job til next year sometime. Said that he needed to try to heal a bit more. Cautioned him to find a line between careful and having fun. Recap* Because of the blood thinners and he condition of J's pelvis if he fell it would not be any fun. His pelvis is like an old osteoporotic lady, very easy to shatter.* Also said that maybe J should look into working from home when he does decide to work and said no physical labor. I just have to convince J that he did not mean dishes and clothes:). Other than that it was really nice to get to see Dr. Tannir and Zita(PA) again. They said that we look younger than the last time they saw us, I said really I feel about a 10 years older! We do not have to go see them again for another 3 months!!! We will do scans and meet with Dr. Nieto as well. Jason will start getting revaccinated then too. That will put us a year post transplant and each and every month further away we get the more likely that it is gone for good!!! Thanks everyone for your support! Prayer request, that we get some rain!!! God is GOOD!! Prayers Welcomed! Kimmy