A little update

So Jason came home on Tuesday. He is feeling pretty tired and still has some wheezing and coughing but is very happy to be in his own bed. He is getting some rest and he and Ronan are playing when he has the energy but either the illness or the cure pretty much wiped him out. He is getting out of bed and coming to the living room, tomorrow Im going to try to get him outside for a bit if the weather stays nice. He is back on blood thinners twice a day and at a bigger dose, luckily his belly is pretty numb to these now. The swelling has gone down on his right foot and is lessening on his right leg so thats good news. We go back to the doctor on Tuesday so I will have more to report then. Prayers for an event free weekend! Prayers Welcomed! Kimmy

Whats it like inside the bubble...........

Alright so yesterday at the hospital the Dr on call ordered a Doppler Sonogram of Jason's leg(this checks blood flow). His leg had been swelling and brought it to the attention of the Dr and PA but it didnt get anywhere. Well yeah for the Er doc, apparently J has a blood clot that stretches from his groin to his knee. It could be further down they just dont scan the calves. So he is started on blood thinners again and Im not quite sure what the next step is. He finally got into a room and they initiated the treatments for the RSV. He says that a plasic bubble is put over him with a hole in the side so that he can get himself drinks, then there is a mask on the inside that delivers the medicine. Sounds space agey, but he if it works. No one is allowed in the room when he is getting the treatments so I dont have to feel so guilty about not being up there even though Roo and I are sick and logically I know I should not be there. The treatments will last 5 days so its looking like hopefully Monday for release but probably Tuesday. He is doing well, just bored. He is going to make sure that with the clot its okay for him to get up and walk around. Thats about all for now. Its amazing how God works, J goes in for a virus to be treated and a life threatening blood clot is found...Thank you Jesus for watching over my husband. Prayers Welcomed! Kimmy

Icky, Yucky, and then some.............

Well we all have the icky crud which is apparently RSV. For me it equals a pretty annoying cold and cough. For Ronan, a cold, cough, with some crazy mucous amounts, for Jason it equals a trip the the hospital. We took J to the Dr. yesterday and they drew some cultures and were sent home while those stewed. We went to pick up Roo from my parents went by the grocery store to stock up, when we got home at around 9pm we get a phone call from Dr. Nieto. He asked us to come up to the hospital through the ER for Jason to be admitted. He has to get some sort of medicine there to keep this from turning into something really bad. I dont know how long he will be in, he doesnt actually have a room yet and still in the Er. They are doing breathing treatments right now so thats about all I know. Ronan and myself are slowly getting better with lots of fluids, a humidifier, and inhalers. On a different note, my Aunt, Carol has been in the ICU in Austin for the past 12days. She is on intubated and on a ventilator and will be putting in a tracheotomy tomorrow. She is having some major complications from the flu and pneumonia. Please pray for the doctors to be able to pin down the cause of this and to treat it accordingly, pray for strength for her and Jason to overcome these illnesses. You guys are amazing! Prayers Welcomed!Kimmy

Good to GO!

Well the weather might not be, but we are. We had an appointment with Dr. Nieto today. First off let me start by saying that Jason walked at the hospital. He did not use a wheelchair. I am so proud of him. We are suppose to have a physical therapy appointment tomorrow, we will see if that works out tomorrow or not. Second, all of Jason's blood work is looking excellent. We only had one tumor marker back at the time of the appointment but it was the one I was worrying about and it is within normal range and less than a month ago. He is apparenty doing so good we dont have to be back for 3 months! This is the first time since 2009 that we have got to go that long between check ups. On one hand its excellent on the other it petrifies me. When we go back in May we will repeat tumor markers and ct scans and meet with Dr. Nieto and get to visit Dr. Tannir. Obivousely we well go back if we suspect something but for now its physical therapy and we will add in occupational therapy and just work on moving forward. Prayers Welcomed. Kimmy

Ha! Dr.s should learn to trust instincts!

Alright well J did not go to therapy on Tuesday or on Thursday. I did however take him to the Stem Cell clinic on Thursday to see the Dr. Nieto because a week later he was still having diarrhea and vomitting. Well we dropped off a "sample", Dr.Nieto said that this was still part of the stomach flu he contracted from Roo and myself. I was like really 7 days later, shouldnt he have fought this off by now or at least showed some sort of improvement? He said no, for J to drink, and eat as he could, Im like thats the problem he cant! Anyways they sent us home, and told us to bring up another "sample" on Friday. Well Friday comes along and I get a call from them that his other sample came back positive for C. Diff. Yes that is shortened for some complicated to pronounce thing that is basically an infection of his intestinal tract due to antibiotics. He did have this in the hospital and apparently if you have had it once your are prone to relapse. So they called him in another antibiotic(kind of funny) to get rid of it. Jason has started eating a little bit and drinking a lot better. SO there it was more than just the virus and even if it wasnt no one should go 7 days with eating next to nothing and drinking next to nothing. We go to physical therapy 3 days next week and then of course an appointment on a totally different day so we will be up there four days next week. Oh well. We were planning on going to Austin this weekend but that got pushed back because of J feeling poorly so we will try again for this coming weekend! Just a little update Prayers Welcomed, Kimmy

Title here!

Alright so I came down with some random stomach virus on Thursday of last week and was over it Friday with some lingering effects, Jason got on Friday,Roo got it Saturday night and was right as rain on Sunday. Jason not so lucky. He has been dealing with it ever since and finally decided to take him to the ER on Monday. After test it came back as just the same virus, they did push 2 liters of fluid through him and gave him more nausea meds. We are just waiting to see, all of his blood work came back fine, and the good news is that his LDH (a non descript tumor marker but the only one that showed up last time) is in the normal acceptable range for the first time since March of 2010!!!! This is pretty exciting. As of February 8th Jason will be in Remission for 4 months which is the same amount of time that his recurrence happened last year. For both of us it is nerve wracking and its like if we can just pass this point we can breathe alittl easier. Jason did not go to physical therapy today but we will be going on Thursday. Thats about all I have for now. Prayers Welcome! Kimmy

PT is on!

On Tuesday after be woken up at 10am by the phone. Our little alarm clock i.e. Ronan, did not wake up at his customary 7:30. I had to hurry and get Ronan, Jason, and myself ready for J's dr. appointments. As an aside I am so sorry Mom's group for bailing! Mimi and Pop came and picked up Roo and J and I headed to MDAnderson. First we had his evaluation with Physical therapy. They wanted to know what Jason's goals were and we said walking without a walker, much better balance, being able to walk up stairs, and working on his drop foot issues (ankle weakness that cause him not to be able to keep his feet inline with his leg). They said okay and did some strenght test, sit to stand test, and endurance test. Basically theses are just starting off points. We set up appointments for the next two weeks, we will go for a month, then re-evaluate and then go from there. We did have a few issues with his pulse rate which sky rocketed and his oxygen levels which dipped pretty significantly. We are attributing this to him just getting over the bronchitis. They do as a precaution have him on oxygen as he is doing activities. He left feeling pretty good about himself but extremely tired. We then went to see chronic pain management and got refills for his pain meds and set up an appointment for next month to see if any adjusting needs to happen. On the whole other than it taking FOREVER, it was a pretty successful day. Oh another happy note, Ronan went to the bathroom on the potty!!!!! Of course he hasnt since, but its a start. We are doing pretty well, just trying to get the house cleaned up and organized, kind of early spring cleaning. Thats about all that is going on for now. We are headed up to Austin at the end of this month for a few days to help my Nana celebrate her birthday. We go back to see Dr. Nieto on the 4th of February. Prayers Welcomed! Kimmy