Well our anniversary was very low key this year. J had therapy and we all went and picked up Olive Garden (fancy I know). It was just good to have him home. Halloween was fun kind of. Jason was feeling under the weather so he stayed here with his mom. I took Ronan over to my parents house and we hit a few houses in the neighborhood. Ronan was really getting into it and he was the cutest Lightning McQueen ever! He got two pieces of candy at a house and he says"I have lots of candy" We all need to adopt that attitude. On Wednesday we had to go take and get J's CVC removed because it came back positive for infection. THis would explain his generally feeling lousy. And of course another anitbiotic. They will replace the line before his high dose chemo.
Yesterday I ended up taking J to the Er. He was still having a low grade fever, lots of drainage, coughing, and wheezing. We took him and basically it appears he has a cold. Chest xray was clear, he did a breathing treatment and his breathing improved. They did a nasal swab so we will see if any viruses show up on that. So they gave him another antibiotic and an inhaler and sent him home. He seems to be doing a little better today.
Now on to other news. Jason's second transplant was denied by Blue Cross Blue sheild as being investigative, experimental and not proven to be safe or effective. So now MDAnderson is appealing this and we will be appealing through IRO ( Independent Review Organization) with the Texas Department of Insurance. Hopefully it will work otherwise we have to self pay upfront for the cost of the transplant. Roughly $147,000. So prayer request...please let the insurance company change their mind or for the IRO to rule in our favor. Prayers in general please.. Prayers welcomed. Kimmy
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