PT is on!

On Tuesday after be woken up at 10am by the phone. Our little alarm clock i.e. Ronan, did not wake up at his customary 7:30. I had to hurry and get Ronan, Jason, and myself ready for J's dr. appointments. As an aside I am so sorry Mom's group for bailing! Mimi and Pop came and picked up Roo and J and I headed to MDAnderson. First we had his evaluation with Physical therapy. They wanted to know what Jason's goals were and we said walking without a walker, much better balance, being able to walk up stairs, and working on his drop foot issues (ankle weakness that cause him not to be able to keep his feet inline with his leg). They said okay and did some strenght test, sit to stand test, and endurance test. Basically theses are just starting off points. We set up appointments for the next two weeks, we will go for a month, then re-evaluate and then go from there. We did have a few issues with his pulse rate which sky rocketed and his oxygen levels which dipped pretty significantly. We are attributing this to him just getting over the bronchitis. They do as a precaution have him on oxygen as he is doing activities. He left feeling pretty good about himself but extremely tired. We then went to see chronic pain management and got refills for his pain meds and set up an appointment for next month to see if any adjusting needs to happen. On the whole other than it taking FOREVER, it was a pretty successful day. Oh another happy note, Ronan went to the bathroom on the potty!!!!! Of course he hasnt since, but its a start. We are doing pretty well, just trying to get the house cleaned up and organized, kind of early spring cleaning. Thats about all that is going on for now. We are headed up to Austin at the end of this month for a few days to help my Nana celebrate her birthday. We go back to see Dr. Nieto on the 4th of February. Prayers Welcomed! Kimmy