Christmas has come and gone....

Well we had a pretty quiet/ busy Christmas. Apparently whatever bug that Ronan,my MOm, and my sister had decided to hit me too. So wheneber I am within 3 ft of Jason I am wearing a mask, washing my hands constantly, and sleeping in the other room. OH well. Poor Ronan was still sick on Saturday so we actually took him to an after hours clinic and they said all of his symptoms still point to a virus but that fluid is builiding behind his ears so they did start him on some Amoxicilin. Funny enough out of all of us Jason is doing the best. We went and saw the nurse of Friday and did another blood draw, his counts are still good we just had to do a magnesium infusion. Which took 4 hours to get the medicine to go. GRRRR. Christmas we woke up and my parents and sister brought Ronan over we had breakfast and opened presents. Roo took a nap and then we went to the clinic. Unfortunately Roonan was still contaigous so he had to go back with Mimi and Popi and that did not make him a happy boy, he wanted to stay home and play with his toys. Not much we can do, I can stay away from J and not sneeze on him but Roon cant. They are taking him up to Austin for a few days so that will be good and hopefully by the time they get back he and myself will be feeling better. At some point next week we should hopefully get J into outpatient physical therapy at the hospital. He really is doing a great job this time around. He even made Roo waffles for breakfast on Christmas. Send healing vibes our way. Prayers Welcomed! Kimmy

Christmas time is here............

Well in the house, the weather is a different story. Jason is home! This is so exciting he only stayed the 21 days not 60 like last time. WOHOO!! Yes he is home, however, we did have to be back up at MDAnderson today. He had a blood draw and a meeting with the Physician Assistant. His blood counts all look good, no fever, and he is not taking any blood pressure meds right now. He walked into the house yesterday and is so far trying really hard to keep moving. He is still having some trouble with nausea but interestingly enough it seems to be centered around chicken. We talked and decided that maybe protein is a little to complex for his digestion right now so we are kicking it vegetarian style, well at least Jason is. He has the usual suitcase full of medicine, I actually have to transfuse one through his picc line. Oh well as long as it keeps him from getting sick, Im game.
Ronan is at Mimi and Pop's for right now until his cold clears up. He seems to be getting better day by day, he is giving Popi a run for his money! Mimi is sick but hopefully she will be feeling better soon. A pretty low key Christmas for everyone this year. Thats alright as well because we are all together.
I may not update before Christmas so let me say that my family is so blessed that so many people keep us in your prayers. We would not have made it this far with them. From our Family to yours, have a Merry Christmas and a Happy New Year!!! Prayers Welcomed, Kimmy

Post number 82!

Alright so Jason should be coming home at some point this week. There are a few different things going on with him right now. His stomach is basically being lazy. Its just not digesting food right now. They say this is caused by the chemo and it will just take time to get over. Right now nausea is under control and he is handling a clear liquid diet just fine. He has a blood infection probably from the port again. I dont know why I managed to keep him infection free for the past year with the ports but they cant. Oh well, they are managing that with antibiotics. He is still walking, slowly and not as well as when he went in this time but better than when he left the hospital last time if that makes any sense. He is very ready to get home.
Roo is sick. He has pink eye and a cold. The doctor said the pink eye will be under control by the time J is home but the cold will still be contaigous from 7 days of onset so until Christmas day. If J comes home before then Ronan will have to go visit Mimi and Popi til Christmas. Thats okay for a few years my sisters and I would spend Christmas Eve with our Nana and that was always fun. We would wake up go eat breakfast then go see what Santa had brought us.
We will figure it all out we always do. Just a small update. Prayers Welcomed! Kimmy

This is what I know....

And it really does not add up to much.. HAHA! No, okay so Jason is still extremely nauseated and the meds arent really working very much. I emailed Dr.Nieto last night and because he apparenly lives and breathes MDAnderson I got an answer last night as well. He forwarded it to the Dr. on call. Jason got a chest xray, an abdominal xray and will be going for an abdominal CT scan. I dont really know what they are looking for exactly I can only speculate that it is someother cause for his nausea. So my plans for Arkansas are on pause for today, we'll see what happens and I will update when I know more! Prayers Welcomed! Kimmy

Post number 80

I am so sorry I have not updated this in over a week and Jason is in the hospital. Well here you go. I left last Saturday to come home and take care of Ronan. I did go visit last Tuesday and probably will go visit tomorrow (Sunday) or Monday. He has finally hit nadir (the lowest point your cells drop). His white blood count is 0.0, the only way to go from there is up! He started running a pretty high fever on Friday night and it has continued but has lessend slightly to a pretty constant 100.8. That will happen when you have no immune system. They have him on an arsenal of anitbiotics, anti fungals, antivirals, so hopefully something will work until his white blood cells recover. They are giving him platelets and red blood cells as needed so if you are in the Houston area and can donate blood to MDAnderson please do in Jason's name. His mom is staying with him since Im home taking care of Roo and things here. He seems to be doing pretty good as far as having this treatment goes. Like I said before its alot less harsh than last time but still harsh. He is still having problems with nausean and I think at last count he is on 4 different nausea meds that work most of the time, except you know when he moves. I think the only thing thats going to help with this is time for his stomach to heal and for less meds to be going in him. He seems to be in good spirits, is ready to be home, and working hard to get home before Christmas. Ronan and I are taking a side trip up to Arkansas to visit my sister, her husband, and my nieces. We will do a little mini Christmas up there than its back here to finish up Christmas prep and get the house ready for hopefully Jason coming home! Prayer request today ( or tonight rather) please let whatever infection that is causing J this problem to resolve quickly! All prayers Welcomed! Kimmy
Oh PS. If you are on my Christmas Card list they will get to you eventually but you just might have a Christmas card in January!

Day -5 through -4

Well yesterday was pretty uneventful. J just got the chemo, he felt a little more tired than usual. Physical therapy came in and made him walk. Today hopefully Occupational will be in and there is an exercise class at one I will make him go to. There has been quite a bit of nausea and only one episode of vomiting,so thats good although it was a spectacular episode. Dr. Nieto said that Jason is tolerating this very well so heres praying it continues like that. There really isnt much to say this go around and I would like to keep it that way. J is getting a shower right now so he will smell better! Just kidding. Ronan is doing pretty good considering the circumstances, he is even sleeping through the night in his big boy bed Im told. I miss the little guy and he misses us. Thats about all for now. Ill update when there is more to know. Prayers welcomed! Kimmy