Another Update...........

So howdy all. Wow, its been over a month since my last post! This in and of itself is amazing. Wahoo! An entire month with nothing exciting enough to blog over, I am ecstatic and pray nightly for these to continue for years.

Everything is going well here. Ronan has started daycare and seems to enjoy it. Though the downside is he is bringing home alot of colds! Oh well he is just helping Jason build up his immune system quickly. Jason is doing great. We are both going to gym three days a week and the days he is not at the gym he is in physical therapy. Its amazing the difference a year makes. Last year at this time we were gearing up for the benefit and Jason was over 360lbs, barely walking, in a wheelchair, and almost completely unrecognizable. Today he is 260lbs walking well enough to go without the cane at home and each day is looking more and more like the guy I married. Well except for the fact that so much chemo has now given him curly hair :). I am getting ready to go back to school in August. It will be quite different than the last time I went. Things are going good and I am doing my best not to question them, just thanking God for each day.

Big scans are coming up in September. Those are the one year post first transplant. Its very exciting yet terrifying at the same time. Remember the further we make it away from treatment the better chances we have of staying in remission and ultimately dare I say Cure!

Prayer request, pray for Jason's continued improvement. And maybe throw in a word for me about patience with the 18-22 year olds I will be taking classes with. Prayers Welcomed! Kimmy

Just an update....

Thought I would drop in and let you all know how we are faring. All in all we are doing well! Jason restarted physical therapy this week. We are very excited about this because he has tons of room for even more improvement. He has been getting down on the floor (laying on his stomach, or sitting for short periods of time) and playing with Ronan. Each day he is improving in someway. Ronan is doing good he is making leaps in bounds of improvement with potty training! This is very exciting. The week of the 4th he will be starting daycare and I think I am having a harder time of it than him. I am having a hard time trusting other people with my only child....Oh well, he will have a blast and everyone tells me it will be harder on me than him. Roo going to daycare will give me more time to work on my business and free up time for me to go back to school. Hopefully if its not too much maybe even squeeze a part time job in there. So all in all everything is headed in the right direction with J and us. We have a minor snafu with my Mom and will be addressing that on this upcoming Tuesday. Hopefully that is all it will be. So prayer request this week, pray for good health for my MOm....Prayers Welcomed! Kimmy

And the news is........

We went and had Jason's follow scans done yesterday. Its 10 months post first transplant and 6 months post second and..... HE IS STILL IN REMISSION!!!!!!!!!! There was nothing on the scans to indicate a relaspse and his tumor markers are still great. His blood counts look good. The only bad news we walked away with is that he still has the blood clots in his lungs. He is still being given a blood thinner and it unfortunately looks like he could be doing this for the rest of his life. BOOO! But if thats the price we pay so be it. Dr. Tannir (yes ladies and gents we got to see him for the first time in about a year) walked into the room and gave Jason a hug then gave me one. I love this doctor. He amazes me with his compassion for his patients. I dont know if its just Jason and myself(because we are lovable) or if he handles all his patients this way. He was very happy with Jason's progress. Said that he knew we had had very rough time but was glad that Jason is looking so good. The last time Dr. Tannir saw J he was 360lbs due to water weight. J was 260lbs today. We did learn that somehow the chemo affected J's heart and that he will always run a higher pulse now. Thats okay he just wanted to be like me!:) He did tell J not to worry about going back to work or looking for a job til next year sometime. Said that he needed to try to heal a bit more. Cautioned him to find a line between careful and having fun. Recap* Because of the blood thinners and he condition of J's pelvis if he fell it would not be any fun. His pelvis is like an old osteoporotic lady, very easy to shatter.* Also said that maybe J should look into working from home when he does decide to work and said no physical labor. I just have to convince J that he did not mean dishes and clothes:). Other than that it was really nice to get to see Dr. Tannir and Zita(PA) again. They said that we look younger than the last time they saw us, I said really I feel about a 10 years older! We do not have to go see them again for another 3 months!!! We will do scans and meet with Dr. Nieto as well. Jason will start getting revaccinated then too. That will put us a year post transplant and each and every month further away we get the more likely that it is gone for good!!! Thanks everyone for your support! Prayer request, that we get some rain!!! God is GOOD!! Prayers Welcomed! Kimmy

This is Post number 100!!!!!!!

Just an update!So Jason had a follow up appointment with his Rehabilitation Dr. Dr. Fu is great. He is the one that got Jason on to the Rehab floor back in September of last year. Well 6 months ago at the follow up appointment after discharging from the hospital post first transplant, Jason was only doing 25% of his daily care and activites. That meant that 75% was either assited or with me. He was in the wheelchair and had to use a slide board to transfer out of chairs and bed etc. Now 6 months later Jason has been cleared to use a cane to walk!!! He still has a long way to go. His balance is off, he has some pretty wicked gait abnormalities, his neuropathy has curled his toes on his right foot so he occassionally steps on them (ouch!), still has some slight drop foot issues but he has done so well!!! To go from not walking at all back in October to walking with a cane is fantastic. Im am so proud of him! We go back in the beginning of June for 6 months post second Transplant and 10 months post first and it still looks good. Jason said that he has had less pelvis and sacrum pain so maybe those are healing too!

Ronan is doing better, Jason is doing better, and I managed to only feel bad for a day or two! All in all not too bad. Im thinking that this weekend Jason and I might have a date night and take his new walking cane out for a spin! Prayers Welcomed! Kimmy

Icky!!!

Well nothing cancer related wahoo! But our house is a germ factory right now. We took J to the Er last night because he was coughing up green stuff and whatnot. Well they gave him antibiotics at the hospital and sent us home with a perscription for the rest of it. He has an upper Respiratory infection. Well Ronan went and spent the night with MiMI and Pop because you never know how long it will take at the Er and I was suppose to go to Sweet Adelines but best laid plans and all that jazz. He had a little bit of a cough when I dropped him off but he was running around and playing. Mimi called this morning and said I needed to schedule an appointment for him. Well Dr appt later poor kid has a double ear infection, pink eye, and an upper respiratory infection. Icky Icky Icky! Im just hoping that if it is a virus that it stays away from me long enough for the other two to start feeling better. Here's hoping! Prayers Welcomed! Kimmy

Post number 98!

So sorry about not writing in a while but no news is good news right! Well we are coming up on a year since Jason relasped and I am both extremely excited and equally terrified. Everything has been relatively uneventful except for an UTI with Jason but he is on antibiotics for that and it seems to be clearing up. It seems like we cant do anything but wait for the other shoe to drop. I think we have been bombarded with so much for the past 3 years that we have kind of forgotten how to live normally or our new normal! Jason is getting stronger at every turn. He is still going to physical therapy 3 times a week and his improvement is great. He still has a very long way to go but he will get there I know it! We went to Arkansas this past weekend for a short trip to celebrate one of our niece's first birthday and to celebrate Ronan's third birthday. It was a nice trip and the first we have ever got to take as a family. Oh yes you read that right our little man turned 3. You never beleive the people that say enjoy it while you can because they grew up so fast until you have one yourself. Where did our baby go? Oh J went to see the opthamalogical surgeon and she said that she does not beleive that Jason has Graves Disease, we will know with more certainty after the CT scan this Friday. Well I'll leave you for now and hopefully more uneventful updates will be filling this corner of the web!Prayers Welcomed!Kimmy

Time passes by......

So not a whole lot going on in the world of Jason's Journey. Thats the way I like it. Jason continues to go to physical therapy and he is improving. He had a DEXA scan back in March which is a bone density test for those who dont know. His left hip is osteoporotic along with head of the femur the right hip is osteopenic which is not good just not to the point of osteoporosis yet. So they started him on the flying nun medicine or Boniva for those who didnt get my Sally Field reference. Hopefully that will start replacing some of what his bones have loss. We have the appointment with the opthamological surgeon to see what is happening on the grave's disease front. Interesting enough he has the appointment before he has the CT. Lets see Monday I drove down to Texas State to get everything cleared up for me to enroll for the fall. I am sooooo excited. We are driving up to Arkansas next week to visit my sister and nieces', Reagan is turning one already! Boy how time flies, as it happens Ronan's birthday is going to be while we are up there so we will celebrate that too. Although lucky little guy that he is is having two parties. Then Easter is the same weekend as Roo's party and then maybe ArtFest up in Austin with Carolyn if we are not pooped out of how busy this month has been. Well we are all doing pretty good so far, will report more when there is something to report.....Prayers Welcomed. Kimmy